We have been contacted by many parents, and are grateful to all parents who took part in our research and the films. Some parents have shared their stories in writing – you can access the stories by clicking on the different pages for Silke, Janette, and Kate. We hope to add more stories. We know that many families find it helpful to hear from other parents with similar experiences – if you would like to share your story with us, we would be pleased to publish it. Please contact us.